all 8 comments

[–]LordoftheFliesAmeri-kin 2.0. Pronouns: MegaWhite/SuperStraight/UltraPatriarchy 7 insightful - 1 fun7 insightful - 0 fun8 insightful - 1 fun -  (2 children)

I dont have a job rn due to my chronic illness

I didn't realize being a fat, useless NEET counted as an illness. But damn, I'm almost impressed by the utterly blatant grifting on display here. Too bad this bucket of fail couldn't put that sort of effort into being a person instead of what they currently are.

[–]EXSJW[S] 3 insightful - 1 fun3 insightful - 0 fun4 insightful - 1 fun -  (1 child)

Full time feckin job.

[–]alladd 3 insightful - 2 fun3 insightful - 1 fun4 insightful - 2 fun -  (0 children)

you think it's easy rephrasing "i want money for doordash" thirty different ways?

"i need to hire a cleaner because i can't see my own floor because i'm so disgusting" was my fave

[–]Musky༼⁠ ⁠つ⁠ ⁠◕⁠‿⁠◕⁠ ⁠༽⁠つ 🐈 4 insightful - 1 fun4 insightful - 0 fun5 insightful - 1 fun -  (3 children)

Actually the stuff she's saying sounds legit for an EDS / chronic pain sufferer. I get the issue with multiple accounts and e-begging, but a few of these things I could say myself. Doing even little stuff becomes hard, you can only do so much before your body is fucked, and it's a nightmare trying to get doctors to help.

I might try to contact her, not to give her money, but there's some things she could do to help, like losing weight and there's a few medicines / supplements I have had good results with.

i can only stand and walk for about an hour at a time at this point, and that much standing/walking usually leaves me unable to function for the rest of the day so mostly use that small window for housework like laundry, cooking, showering, etc, and i usually cant do all of that in a day anyway.


i need a carer but i am too overwhelmed to even make it to the doctors appointments to get the ball rolling and get on disability.


I finally buckled down and made a GoFundMe campaign for help seeing a specialist for my possible Ehlers-Danlos Syndrome and POTS. At this point, it's imperative that I get a definitive diagnosis and treatment, but this specialist isn't covered by my insurance. I don't trust any other doctor to get to the bottom of this, as I have received constant invalidation from non-specialists. Having a diagnosis would give me peace of mind, as well as the opportunity to get proper treatment.

CC: u/Hongkongphooey

[–]EXSJW[S] 6 insightful - 2 fun6 insightful - 1 fun7 insightful - 2 fun -  (2 children)

I reckon some of it could be legit, but given that they also say they have multiple personalities & I saw one post saying "i was gaslit at the hospital" & the way he or she cannae even tell? Keeps putting fat in his description I think he would nae be one of those that would take being told to lose some weight well. That will just be big society medicine pharma shaming them.

  • given the way some of these ppl boost & support each other it can be hard to tell if they legit have the thing because like prisoners up for parole they basically coach each other on what to say & how to sound realistically believable.

[–]Musky༼⁠ ⁠つ⁠ ⁠◕⁠‿⁠◕⁠ ⁠༽⁠つ 🐈 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (1 child)

but given that they also say they have multiple personalities

Just assuming she's not full of shit, she might be conflating the mental toll chronic pain and medical gaslighting takes for being DID. The mind doesn't take being stressed constantly very well, it'll bend rather than break.

given the way some of these ppl boost & support each other it can be hard to tell if they legit have the thing because like prisoners up for parole they basically coach each other on what to say & how to sound realistically believable.

True, but if she's looking for a meal ticket, EDS is a bad pick. It's the Zebra problem. EDS is considered so rare (it may not be as rare as they thought -- 3 of us are on this small forum) a case is pretty much unthinkable and the doctors will just dismiss you off hand. When you hear hoofbeats it's probably a horse and not a zebra. Just sometimes it is a zebra. She mentions looking for a specialist, because that's the best chance she won't just get ignored or misdiagnosed. There are only a handful of those specialists in the entire country.

Also, there's no medically accepted treatment. Opiates are contra-indicated. There's no drug seeking reward for the condition. I don't find there's a lot of sympathy either, since it's considered a fake white woman disease, and people get tired of hearing you're in pain all the time. Talking about it doesn't make it better anyways, you just dwell on it.

And the only subvariant of EDS that can't be confirmed with genetic testing is hyperflexible EDS, in which case she'd be hyperflexible and that's demonstrable.

[–]Alienhunter糞大名 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (0 children)

EDS is considered so rare (it may not be as rare as they thought -- 3 of us are on this small forum) a case is pretty much unthinkable and the doctors will just dismiss you off hand.

Don't mistake my skepticism for hostility. But I've known a few people that claimed to have EDS. And while I'm admittedly very ignorant of the medical side of EDS specifically. I am somewhat familiar with what I'd call "trendy" self diagnosis and the kind of WebMB I'm convinced it's this specific rare thing and the doctors don't know it, kind of people.

I don't think they are faking it, I don't think they are necessarily crazy or hypochondriacs either though I think they exist in these circles. But I do think that when people have some problem and they don't know about what the cause is, there's a lot of comfort that can be found in finding others with the same problems and knowing what the underlying cause is, that it can create that social contagion dynamic. Or at the very least, I'm extremely skeptical of anyone who is using their disease as a way to monetize videos or doing normal influencer type things. We had similar online trends towards autism and Tourettes in the past. Glutin intolerance or Celiac is another real condition that became trendy and a number of people swear that they have it despite there being no real medical evidence that it is the cause.